News

The Washington Post (1/17, Aleccia) reported Susan Saran was diagnosed with frontotemporal dementia at age 27, then “found a bucolic retirement community in rural New York whose website promised ‘comprehensive health care for life.’” However, Saran is now “fighting with that community over her right to determine how she will die,” because while Saran “signed an advance directive for dementia” in 2018, officials at the Kendal at Ithaca continuing care community “said they could not honor her wishes.” The center’s “lawyers told Saran that the center is required by state and federal law to offer regular daily meals, with feeding assistance if necessary,” with no provisions for those whose directives call for caregivers to not provide hand-feeding and fluids past a certain point. The “cruel quandary” is likely to become more common “for the 2.2 million people who live in long-term care settings in the United States.” (SOURCE: APA Headlines)